Patient and Public Involvement and Engagement in Research needs to be a meaningful, safe and productive experience for everyone involved. What are the ethical issues in ensuring this is the case? How will Patient and Public Involvement and Engagement be responsive to peoples' values, motives, needs and preferences to build inclusive, diverse and purposeful relationships?
Bringing together experience of involvement from multiple research stakeholders from all four nations and across the range of research activities, a group including ARC East of England and ARC North East & North Cumbria, the Health Research Authority and independent Public Contributors and Researchers are organising collaborative events to consider a shared understanding for researchers and Patient and Public Contributors, and to build relationships across the community of practice, helping us all to take forward our commitment to inclusive involvement in research. Our aim for the events is to develop an inclusive and participatory process for developing such participatory ethics.
Previous events
Reconnecting the Ethical Anchor on Thursday 25 September 2025
Watch the event here:
Access the PowerPoint slides here
View the results of survey questions during the event
Find out more:
- A framework for public involvement at the design stage of NHS health and social care research: time to develop ethically conscious standards – PubMed
- Patient and public involvement and engagement: Do we need an ‘ethical anchor’? – PubMed
- Ethical Practice Guidelines for Public Involvement and Community Engagement – ARC