The Patient, Public Involvement, Engagement and Participation (PPIEP) workstream at ARC East of England collaborates with patients, carers and communities to ensure research is shaped by the people it’s meant to benefit. Involving lived experience makes our work more relevant, meaningful and more likely to improve health and care.
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What is Public Involvement?
Public involvement means doing research with people, not to or about them. This means patients, carers and community members help shape our questions, decisions and activities.
PPIEP also includes:
- Engagement – sharing research and starting conversations
- Participation – taking part in research studies
Why It Matters
When people with lived experience guide research, it becomes more relevant and more meaningful, making a bigger difference to health and care.
What We Aim For
We aim to create an environment where everyone can contribute in ways that suit them, supported by clear communication, flexibility and respect.