Members of the public help guide the research we do and are embedded in all of our work
The ARC EoE Public Involvement Hub
In 2024 we are expanding our public involvement to include a group that will work with the Public Involvement Lead (Bryony) to provide advice, guidance and feedback to ARC EoE researchers. The Public Involvement Hub will offer public involvement that is not condition or experience specific and will provide general feedback on projects, proposals, and plans for sharing research findings with the community.
Why should I get involved in research?
Because you can make a difference to the future of health and social care. By getting involved in research, you can help make sure research is relevant, useful and beneficial to everyone. People get involved for a number of different reasons. For many, it is about making a difference and making health and social care better for everyone. Some want to share their experiences of living with a condition, being a patient or a carer. And some want to ensure the voice of their communities are represented in research.
You do not need to have any specialist knowledge, qualifications or experience to get involved in research. Public involvement is for anyone who has an interest in health and research. You can find out more about some of the Public Contributors who are involved with ARC EoE and why they choose to be involved here.
How can I support research?
Sometimes being involved in research can be called being a 'critical friend'. A critical friend may ask the obvious or sometimes difficult questions that nobody else has asked, sometimes known as 'pointing out the elephant in the room' in a friendly and supportive way. You can help researchers to see things they have missed or misunderstood while you look at the research from your point of view. You can offer guidance on whether you feel the research is true to the wide variety of needs and values of people who use health and social care. More information about what involvement in research looks like can be found here.
How can I get involved with ARC EoE?
Our researchers involve the public in their research projects, asking for feedback about the research plans, how to ensure the research is relevant to the community and how to share findings in a way that is accessible. If you would like to be added to our contact list to be kept up to date about future opportunities, please contact our Involvement Lead:
Involvement Lead: Bryony Porter
Email: Bryony.Porter@cpft.nhs.uk
What other ways are there to get involved in research?
Opportunities for public involvement in NHS, public health and social care research in the United Kingdom can be found on the People in Research website.