Public Involvement Resources

Here is a list of useful links and resources for anyone interested in public involvement in research.

Resources for Public Contributors 

Resources for Researchers 

Public Involvement Groups 

There are a number of research advisory groups that are well established and open to researchers visiting them to seek feedback and involvement opportunities. Here are some useful links to get started. 

Stevenage Dementia Involvement Group

Led by ARC EoE, the Stevenage Dementia Involvement Group aims to provide opportunities for people living with dementia, and their carers, to influence dementia research and the planning of local services.

Herts Young Persons Advisory Group

We’re a group of children and young people aged 10-18 who live in Hertfordshire. We learn about research and work with researchers to help them plan and do research about children and young people’s health, care, family lives and the communities we live in. 

Young People Improving Research (Generation R)

A national organisation supporting a number of local initiatives. GenerationR Alliance Young People’s Advisory Groups (YPAGs) are funded by the National Institute for Health Research and/or NHS organisations through various channels. YPAGs support the design and delivery of paediatric health research in the UK. Some groups meet online and may be able to support research in the Eastern region virtually. 

CA:RING (Children and Adolescents: Research Involvement for the Next Generation)

CA:RING is a community designed to improve public involvement in healthcare research. Our community has over 200 members, which includes young people (aged 11 to 24) and parents, carers and guardians. We can offer a range of advice and support for researchers, including those who do not have much (or any!) experience with Patient and Public Involvement.

Public Involvement in Social Care Research (PI-SoCR) Group

The Social Care Advisory Group was established in July 2022. It is facilitated by Shaping Our Lives in collaboration with the University of Hertfordshire. Shaping Our Lives are a user-led organisation specialising in the inclusive involvement of Disabled people and people from other marginalised communities.

The user group includes people who:

  • Have experience of using social care services (either directly or for a family member or friend)
  • Have experience of doing or taking part in research in social care
  • Are Disabled people with long term health conditions and impairments, including people with learning disabilities

It aims to work with researchers to bring a lived experience perspective and voice to social care research studies by sharing their experience of social care research or of using social care services.

Regional Public Involvement Links 

Another list of links to established research advisory groups in the East of England. 

If you cannot find what you need, please contact our Public Involvement Lead, Bryony ( for further guidance. 

Reimbursement and Payment Guidance: 

Inclusive Involvement:

Useful Tools and Checklists:

Covid-19 Guidance:

Other useful resources:

Get in contact with us at if you have any useful resources we could add.