Here is a list of useful links and resources for PPI advisors and anyone interested in public involvement in research.
Resources for Public Contributors and for Researchers
Free books with examples of co-production in community during COVID:
- COVID-19 and Co-production in Health and Social Care Research, Policy and Practice
- COVID-19 and Co-production in Health and Social Care Research, Policy and Practice: Volume 2: Co-production Methods and Working Together at a Distance
- A research handbook for patient and public involvement researchers – A really useful handbook This handbook is written for patients and members of the public who want to understand more about the approaches, methods and language used by health-services researchers. This book was developed during a five-year research programme funded by the UK’s National Institute for Health Research (NIHR) called Enhancing the Quality of User Involved Care Planning in Mental Health Services (EQUIP).
- Payment Guidance for Researchers and Professionals - This guidance (published April 2021) provides information for researchers who need to cost public involvement activities at any stage of the research process.
- Centre for Engagement and Dissemination - Recognition payments for public contributors
- NIHR Guidance to Coproduction (2018) – key principles
- NIHR UK Standards for Involvement
- NIHR Going the Extra Mile - final report and recommendations of the strategic review of public involvement in the NIHR
Useful Tools and Checklists:
- The importance of feeding back to all those involved
BAME Toolkit - This toolkit, developed by our colleagues in ARC East Midlands, captures best practice and provides researchers with a framework on how to improve the participation of Black and Minority Ethnic (BAME) groups in research.
- The Get-It Glossary - an online glossary of health research terms defined in plain English.
- Jargon Buster - a glossary of words containing the definitions of some of the terms commonly used in public involvement in research.
Other useful resources:
Get in contact with us at ARCoffice@cpft.nhs.uk if you have any useful resources we could add.