Patient-centred outcome measures have been playing an increasingly important role in evidence based medicine as a way to understand the effects of health interventions on patients and families. However, their routine use in practice has been slow and difficult to implement.
Background
The importance of using questionnaires to understand the effect of health interventions has been growing and is increasingly recognised as a fundamental component of evidence based medicine. Specifically, questionnaires which are filled by the patient, who is the person receiving those interventions. In palliative care, it is equally important to learn not just about physical effects, but also, psychological, existential, emotional and practical ones. These questionnaires help shape patient centred care because they focus on their individual needs and can also help improve the quality of the care provided.
Implementing these measures in palliative care clinical practice, in different settings, is critical but
evidence shows that it has not been done widely. It is therefore imperative to learn what are the facilitators and barriers related to implementing these questionnaires in clinical practice. We will update a systematic review we conducted ten years ago on facilitators, barriers and lessons learned on implementing patient reported outcome measures in palliative care clinical practice. We will additionally look for what were the implementation models used, what were the costs of implementing those measures and will also focus on questionnaires filled by family members and healthcare professionals, if the patient is not able to filled them.
Project Aims
To update a systematic review we conducted 9 years ago which had the following objectives:
- To identify the facilitators to implementing patient centred outcome measures in palliative care clinical practice
- To identify the barriers to implementing patient centred outcome measures in palliative care clinical practice
- To identify lessons learned on to implementing patient centred outcome measures in palliative care clinical practice
- To identify the patient centred outcome measures used
In the present study we aim to add the following objectives:
- To identify the implementation models used when implementing patient centred outcome measures in palliative care clinical practice
- To identify what implementation outcomes were measured and how, when implementing patient centred outcome measures in palliative care clinical practice
- To assess costs of to implementing patient centred outcome measures in palliative care clinical practice
- To update the recommendations from the original paper when implementing patient centred outcome measures in palliative care clinical practice to inform the implementation process in palliative care clinical practice for stakeholders at different levels.
Project Activity
Systematic literature review and narrative synthesis.
Anticipated Outputs
Peer reviewed journal publication
Who is involved?
-
Barbara Antunes, University of Cambridge
- Stephen Barclay, University of Cambridge
- Claudia Bausewein, Munich University
- Kathy Eagar, University of Wollongong, Australia
- Richard Harding, KCL London
- Fliss Murtagh, Hull York Medical School
Papers/Resources
Contact us
Stephen Barclay, University of Cambridge
